I have been trying really hard to be consistent in my blogging efforts lately. I’ve been updating my blogs recipe section and sharing lots of IBD-specific posts but realised I hadn’t done any life update posts in a while. I did these a while back when battling Crohn’s tests and found them really cathartic; so I thought I would provide an update of some non-Crohn’s health stuff that’s been going on in my life.
I am thirty-two years old (33 in a few weeks) which is about hundred in blogger years (considering every new blogger I see lately is like 12) so, like many 32-year-olds, I cant help but notice the influx of social media posts that pivot around pregnancy lately.
Especially when they tend to all be along the same idea of: ‘oh my goodness, we wasn’t expecting at all/it happened so suddenly without any planning’ Now I really am sure this is the case for some people; but sometimes these posts (and the media in general) can give those of us in our thirties the impression that pregnancy is something that will happen instantaneously; something we can find a good slot for in between work being quiet and having no holidays planned and something we are in complete control of. Something that we just need to say the word ‘go’ and it will happen.
Part of the reason is there aren’t many people at all talking about otherwise. I’ve seen friends struggle with fertility struggles in the past and when this all first started, I promised myself I would try to use my blog as a space to talk about it. After all, how could I criticise the media and other bloggers if I wasn’t doing my bit too?
However, it is all very well being noble and being an advocate but sometimes you just feel sad; and the thought of exposing yourself in a blog post is all a bit too much to bear. You hate the thought of people feeling sorry for you or feeling pity (and that is not the intention of the post as there’s nothing to feel sorry about). Or to be expecting further updates and be open to share every part of their journey. Yet after a few months, I do feel I now want to blog about this. Not as part of a longer series documenting my future endeavours but just as a warning to other women my age about the potentials of being at risk.
A few months ago, I underwent an AMH test. For those not in the know, this is a test that can basically tell you how many ‘eggs you’ve got left’. Not in terms of an actual headcount (they don’t take a register!) but the hormone can indicate your ovarian reserve. The test was not taken when actively planning for a child or part of other tests; but just recommended by my doctor after we talked about future medication and plans. In my mind, it was a reassurance test; to reassure myself I had plenty of time for all that and could just enjoy my life as it was.
Anyway, I never for one second expected this test to be low. I have had lots of tests in my lifetime because of my Crohn’s disease and I’m always scared of the results. But this one? I was convinced I was going to ace it! I started my periods really late compared to most girls and had several years without them due to my Crohn’s. In my mind, I had loads of extra eggs banked; compared to those bitchy girls in primary school who already had breasts and looked about 25. Finally, my years of looking 12 whilst my peers looked like adults would pay off! Hurrah!
I can’t tell you how gutted I was when I heard that, for my age, the number was low. Low fertility is what she said on the phone. I was 32. All around me women were having babies in their fourties:Cat Deeley, Celion Dion; wasn’t Janet Jackson like 52 or something? These woman had all told me I had all the time in the world-but I hadn’t. How dare you Janet Jackson! You fooled me, you fooled us all !
When I learnt more about it, I realised how rare it was for women to be having babies in their 40s and 50s ; and that many of the celebrities I’d seen were probably using donors and all sorts of fertility treatment (of course I do appreciate it can happen naturally) but of course…nobody really talks about that.
I don’t want this to be a ‘poor me’ blog post because my number didn’t suggested I wouldn’t conceive and I know of women who have had the test and found their number to be almost undectable and to have no chance. That’s what so heartbreaking about this-that we go through our lives having no idea and just assuming from what’s around us the age we’ll be able to have a family.
I have since had some scans; and I do have eggs that are healthy and good quality (phew) but put simply: I am not rolling around in them, I haven’t got loads going spare and Im not going to be doing a Janet Jackson. In a few years, it could very well be a different story. You are born with a certain number of eggs and once your AMH is low; it won’t improve, in other words you can’t rustle up some more eggs with clean living. I know some people question whether AMH is accurate and whilst it is sometimes an indicator of low quality, I’m fortunate that hasn’t been the case for me! But it has definitely reflected in the quantity I have so it has been reliable in that case.
Im not going to lie; I am worried and today I am having one of those days when I feel quite down. Of course, I already have an autoimmune disease with complications and I know that makes things more difficult too. It’s hard because I googled and searched and couldn’t find anyone talking about this at all.
We tend to see two extremes: either extremely fertile couples or those who have struggled for years and years; but rarely anything in between. There’s nothing wrong with either narrative but sometimes it’s the ‘middle bit’ lots of people are going through but aren’t open about.
I remember when I first found out, I found a youtuber who talked about fertility and sent her this massive long message on Instagram saying how much I enjoyed her videos and how alone I felt and basically my whole story. I had found someone to confide in and felt so relieved! She seemed my age and just like me-I wasn’t abnormal!
And she never replied. I know she’s probably really busy and she didn’t owe me anything; but I can’t tell you how lonely that made me feel (and made me realise how important it is what us bloggers do-so please if I ever don’t reply something, please do let me know as it will never be intentional).
So even though this blog post as been hard for me to write it; I felt I needed to write it. This is what I do and the sole purpose I write is to help people. The last few months has been various different hospital appointments and different medications-things I don’t want to go into detail about yet. But at the same time you’ve probably noticed I’ve been a bit absent and I wanted to start being open; so it didn’t feel like something I was embarrassed or ashamed of. Because it should be neither.
I really hope this helps someone in a similar position and if anyone wants to chat, you are so welcome to get in touch. For those interested in the AMH test, it is not available on the NHS and it costs about £80 to do this privately. I did this in an NHS hospital and paid the fee but I’ve seen companies that do home testing kits too.
Pin to spread the word…
xx
Brave post – it’s amazing how many people are in the same boat but don’t mention it til one person reaches out xx Lowen @livingpositivelywithdisability.com
Hi Jenna,
Thank you for writing this!
Not many people know that my husband and I are currently trying. We were trying for 4 months before the Gastro Dr told me to stop because my Crohn’s was too active. Now been trying again for 6 months. Deep down I’m terrified that because I’ve got a bit of a rubbish body I’m going to be one of the ones who struggle! I know several people who accidentally got pregnant and I want to shake them and tell them how lucky they are! I haven’t had any tests to confirm my feelings, but when you’re unlucky in health why would you be lucky in fertility?
I don’t talk about this openly – just safely hidden behind forum doors. And it’s because my career is so important to me. I don’t want my job finding out and then stop giving me opportunities because they think I’d be leaving them for 12 months soon! If I am never lucky enough to get pregnant I want my career to be something to focus on.
But anyway – trying to think positive so here’s to good quality eggs!
Lauren x
hi lovely-thanks so much for sharing your story. It’s so frustrating isn’t it. I completely agree-I love my job and I hate those people who say things like ‘oh I just stay at a job for the maternity’ as if it’s so easy! you need to keep going don’t you! do drop me an email if you’d like to; I’d love to find someone to chat to x.
This is something I’ve worried about for a while. As you know I also have IBD and also Fibromyalgia and both can lead to low fertility. Can I have the test done through my doctors?
Also, thank you for this post. It’s made me want to find results and get my butt into gear and actually find out. Instead of my usual action of ignoring it until it’s a problem.
Xoxo
hi lovely, you can’t go to your GP for this test-although they can do some tests to see if you ovulate etc which is helpful. However, the AMH test is done privately; so you can do it a private fertility hopsital or paid at an NHS hospital when referred to a fertility doctor. I just googled though and they also do home testing kits. Personally, I would go to a private fertility hospital- lots of them would just do this test for you for a flat fee without actually seeing a consultant/needing a referral etc. I googled AMH test and see lots of places in London do this.
ALso to add- this doesn’t necessarily show if you’re fertile; just how many eggs you have left and therefore how long you’d be fertile for. There are more in-depth tests you can do; for example a scan of your ovaries will give you an idea if they’re healthy, any scarring and if they’re producing eggs. They cost about £100
Thank you so much for sharing. Although not for the same reasons, we have been going through similar emotions recently. Like you say, we have this ‘life plan’ and forget that our bodies don’t work like that. I, certainly, grew up just assuming I’d have the privilege of meeting my prince charming and starting a family – never in that dream comes the possibility that something could get in the way. It would be nice for those in the ‘middle’ to know they’ve got others in a similar boat who can empathise if nothing else. Hope you have a more settled few weeks ahead x
Hi Meg, No problem; it is so hard not to know what life has planned isn’t it? Everything crossed for us both.
Look up the website howtomakamommy.com and get the book it starts with the egg! Praying for you but give up just yet! God has a plan for you
thank you so much! xxxx
Thank you. I’m 25 and have been told I have a low ovarian reserve through the AMH test. I had been trying for over a year and nothing. I’m finding it so hard to understand what that means for me and my future. It’s a very lonely place. Especially when it’s happening all around you. And my 18 yr old sister “accidentally” falls pregnant. Your post is the first piece of personal information I could find, that I could relate to. So thank you.
hi Kimberley, thanks for getting in touch. I’m really sorry to hear this. If it helps, I do now have a little boy so it didn’t hold me back in the end xxx